Wednesday, February 15, 2012

Lennox-Gasteau Syndrome help??!

Apparently, Miss Q's neurologist thinks that her new "loss of balance" is seizure related afterall.  But, alas, there is a new drug for Lennox-Gasteau Sydrome for the very first time that may help control her seizure activity.  I am trying not to be too hopeful but am so happy that someone is finally (after 44 years) looking at a drug to help her.  She has been on every drug know to help her, but nothing, not even the VNS has eliminated her seizure activity.  This new drug is Onfi and the discription of the drug and effects can be found on the internet. 

We just hope it helps!!!! 

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